We are home!!

Finn was able to come home today around lunch time.  He is tolerating his g-tube feeds at his normal rate!  We noticed the normal slump after coming off of the IV fluids.  It is like the dextrose in those fluids sends his body where it needs to be.  There isn't any medical reason that we have found and most of it is all subjective information but he is a different kid with this type of glucose at a cellular level.  One day we will find an answer I am bound and determined.
As wonderful as it is being home, coming home is a bumpy ride for us.  Cadence needs a lot of structure and routine and when Finn is in the hospital that gets thrown out the window.  My sweet girl spends her day with very generous friends and family who love her but the large amount of change is hard for her.  The next few days are going to be really rough as we get back on our "routine".  A part of having Finn in the hospital is finding who can care for Cadence and then us dealing with the aftermath of what that looks like, and for my beautiful, sweet SUPER intellegent baby girl it is really hard and causes her whole world to come unglued. 
Hopefully one day we will be in a place where we have a system of sorts but that seems to get pushed under the pile of everything else.

What is next for sweet Finny...  His cool new wheelchair came in, we should be getting that this week, he needs to have a procedure done to quantify the motility in his gi track (I cant remember the test name...) so that we may be able to talk about a GJ tube.  The day before Thanksgiving we are headed to Atlanta to see Dr Kendall, the Mito specialist.  We are going hoping and praying that she will have a wealth of resources for us...

All that to say these next few days as we transition back into a home are going to be trying in many many aspects.

BUT WE ARE HOME!!!