Now that we have been home a few days things seems to have settled down just a tad! Finn is feeling great, though he is still vomiting some and not tolerating solid food well, he is tolerating his g tube feeds beautifully. He has slept so much the past few days enjoying being back in his own bed! It looks like we will be restarting therapies this week and jumping back on the progress train. He and Cadence have jumped right in, it was awesome to see them playing together yesterday, side by side. Prayers that we can continue to keep Finn healthy and that we can find a long term plan for when he gets sick again.
Yesterday 2 families from our community group at church came and helped Andrew cut up a tree (that turned into cutting another one down!!) and working in the flower beds out front. It is truly amazing what a few flowers will do to a yard and my soul. I LOVE working in the flower beds and have these great visions of how our yard should look and these two families loved me in that yesterday.
We are really blessed to have such an awesome community around us. I hate needing. I want to do life by myself without dependence and we are in such a place that I can't and it seems like it is becoming increasingly like that. I hate asking for things that I know I have been able to do in the past and now there isn't enough time in the day to do them. Somedays the reality that I am a person of need is huge and God is continually showing me that that is okay.
Tonight there is a prayer service at our church for Finn and other families who are struggling. I am not sure where I am at being involved. I long for Finn to be "healed" but not sure exactly what that means for Finn. The invitation for us to participate in a service like this has opened up a place for me to struggle with what does true healing look like... more to come!
Join us on our journey on our daily fight for Finn. This blog is going to be dedicated to keep people updated on what is going on with Finn medically, the ups and downs, ins and outs of his precious life and our life surrounding it.
I'm glad Finn is doing well for now :) I understand the struggle to understand healin gin the context of our kids and mito. I know that God is capable of reversing the effects of this disease and curing it completely. I also know that he doesn't often choose to do that, according to his own reasons and plans. I think it is a good thing to struggle with, and to pray as you feel God leads. It has taught me a lot about God as I have fought through different emotions, ideas, and other people's interpretations of healing.
ReplyDeleteSo true Jessica... thank you. This whole journey has taught me more about myself and who I am and who God is more than anything ever could.
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