If there was one thing that I would want for my life and for the life of my kids it would be certainty.  That things could be planned. (good thought huh?)  This morning at 1am I took Finn to the ER after he started vomiting and wouldn't stop and we couldn't get his fever down.  We ended up being admitted and my sweet boy spent his whole day just being a blob.  Lots of rest, lots of mommy cuddles and snuggles and lots of vomiting.  He spent most of his day on an IV solution called D10 .45% normal saline with 10mEq of K. 

We spent the afternoon fighting why we really do need Finn to have oxygen at home and how it is beneficial for him to have it.  And explaining all of the benefits that we have seen from it for Finn

This is that part of having a child with mito that kills me.  Today ended on a great note Finn drank a few sips of juice and didn't vomit, so they are going to just from that to starting his g tube feeds at midnight.  But tomorrow or the next day could bring something totally else.  better or worse.

Tomorrow brings a new day, new challanges and if Finn keeps fighting the way that he fought to day hopefully coming home is in his new future....

New at blogging...

I have decided that there is a lot going on in my mind on this journey with sweet Finny, more than I can convey over facebook or over the phone so I have decided to enter the world of blogging.  I am taking the plunge.  I want to use this blog to not only fill all of you all in on Finn's medical stuff but hopefully to educate some on Mitochondrial disease as well. 

We had some of the best day's this week with Finn that we have had in a long time.  The joy in Finn's face as we painted and the sparkle in his eyes as he explored, he was 2.

  If only for a few days he was really 2.  Friday we noticed that he was starting to become off and by today he was puking, running a temp and has a nasty nasty cough.  Cadence had a cough this week with no fever and this is what it has turned into for Finn.

It is so powerless for me as a mother to know that I can't do anything to keep him from getting sick and even when he does there is nothing I can do to keep him from getting sicker.  I just want my sweet boy to have answers and for life to be easy for him.  He puked tonight after a coughing fit and looked up and said "I ate too much"  oh sweet boy you didn't eat too much, it just isn't fair.

Navigation: M \ Mark Schultz \ He's My Son

I'm down on my knees again tonight
I'm hoping this prayer will turn out right
See there is a boy that needs Your help
I've done all that I can do myself
His mother is tired
I'm sure You can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes

CHORUS:
Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son

Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there

CHORUS

Can You hear me?
Can You see him?
Please don't leave him
He's my son