"you are making me angry" :(

We have experienced a few months of bliss with our sweet boy we felt like we were on autopilot with a healthy boy who had a few attachments but Finn was coming out and blossoming, it was beautiful to watch.

There hasn't been anything to update or write about because life has been "normal"  and we have thrown ourselves into loving every minute of it.  It has been so cool to see him going to school and loving it and making friends and starting to become more independent.

About a month ago we began to notice that Finn was having a lot of increased agitation and fatigue ("old Finny").  So we started to supplement oxygen during the day to help combat the fatigue.  But we are seeing a decline.  In what is the question.

We are struggling to separate what is "i don't feel well, something hurts or I am three".  There is a lot of screaming, alot of meltdowns and a lot of sensitivity.    As these behaviors have escalated we are worn and tired and scared about what it means for our "sweetness".  Unfortunately behavior symptoms are way to vague for most doctors to respond to even in a child.  And Andrew and I are still leery about what happened with an attending at CMC.  So we feel the pull again.  There is something going on with our child who presents himself as miserable but that is the only clue that he is giving us.  We covet your prayers as we start the journey to find what we can use to help him that is also feasible.  We are trialing some new meds and struggling to find non invasive ways to help our boy
Your prayers are coveted prayers for patience and wisdom for Andrew and I, prayers for our doctors and most importantly for our sweetness to have strength to endure.